Lonely no More:)
And whoever welcomes a little child like this in my name welcomes me. Matthew18:5

Sunday, July 27, 2014

Conclusion of Wren's 3 week therapy session and pictures of the Baby

I will get to the therapy........but here is some therapy for your eyes..........but then again, maybe we are just partial.

I know, I know......I'm such a grandma :)

Now more on Wren.......Some one asked me if we got a good report......the answer is Yes.....and No.  Yes because they were very pleased with her progress, and we have a game plan to move forward.  They remapped her processor to give her better sound and to stop the twitching in her face when the device made connection when putting it on.  Her whole right side would give a creepy involuntary twitch.  Weird.  The bad news is .......the twitch is a problem.  They remapped it so it stopped......BUT........the INTERNAL device is faulty, and has to be replaced.  Which means another surgery.  Thankfully she will still have hearing on one side while the other side heals.  It happens very rarely............why us??  Who knows.  

For anyone interested in what "therapy" consisted of here is a description.  She worked with 2 different therapists. Allison on Monday and Tuesday in CO springs, who focused mainly on her listening,  and Kerry one Wed.- Friday in Denver who worked mainly on her articulation with a lot of listening skills thrown in too.  Listening is definitely easier for her than speaking at this point.

Allison took pictures of Wren doing different activities like opening a bottle of milk and juice, pouring the milk and juice, drinking the milk and juice, and smelling it, and then big cup and little cup.  She then laid the pictures out in front of Wren of her doing each activity, and said "open juice"  or smell milk, or pour milk/juice etc.  By the last day of the week Wren was getting them all.  The trick was for her to not only listen for the noun Juice/milk......but also the command, or verb.  The next week was another set of word combinations.  Again she could get them all by the end of the week. Same the third week.  They did other vocabulary words too.

Kerry worked on the same things, but made her say each command. "open milk"  Pour Juice"  etc.  She also had several doll house, dad, dog, cat, chair, table, book, and a hat.   Then she would say "give me mom"  give me book"  etc.  Then she moved to "Put the hat on the bed"  put dad on the chair"  etc.  Then she would walk the dog to the chair and Wren had to say "dog walk chair".  or "dad on chair", or "mom on bed",(a funny side note on this..she always put "mom" on the side of the bed that I sleep on!  If Kerry put me on the wrong side Wren would correct her!) "book on table."    Then Kerry would say "make mom fall down"  and wren had to listen to the whole command and follow instructions.  She did really well by the end.  Now the trick is to get her to understand the same commands in a different context.  So we will continue to work on all of these skills at home.

Kerry also worked on understanding On or Under.......and where, and who.  These are simple language concepts, but crucial to her base understanding.  she would put the dog under the table and ask.  where is the dog?  Wren had to say "under table"  or when asked, "who is in the chair" say... "dad in  chair"  Because even if she can memorize sight words, if she doesn't understand what is going on, reading is meaningless.   If I signed/spoke to her saying "The cat jumped on the box of books"  she might be able to read all of those words, but if I asked her "who jumped on the box?"  she couldn't tell me.  Or if I asked her "what was in the box?"  again, she couldn't tell me.  Every single thing she understands has to be very intentionally taught to her. She doesn't hear or understand "conversational/caught language, all the words normal hearing kids pick up just by overhearing conversation" The Mountain ahead of us seems impossible, and insurmountable.  I have to NOT look at the Mountain, and move on rock at a time......and TRUST God to move the mountain that I can NOT.  I confess to feelings of panic.......especially when I take my eyes off of the creator of this little girl.  When I forget the miracles that have already been done in her, and on her behalf. 

So say a prayer for both of us if you think of us...........and wish us luck :)  She does NOT enjoy doing therapy, and resists.......which makes the rock moving even harder.......and requires MUCH attitude adjustment........and many tears of frustration on both our parts.  

Friday, July 11, 2014

AV Therapy, Week 1

I will start with a few pictures from last weekend before we left, then move on to our Colorado trip and the  Audio Verbal Therapy sessions.

Saturday morning, Dad had an appointment at the hair dressers'.

 These 3 did NOT like the fire works the boys were setting off!  I could hardly move with out stepping on one of them!

 This baby boy LOVES being outside! 

The girls are having SO MUCH fun staying at "Kate's house"......sorry Steve and Christy, it's Kate's house :)  They are having fun with the boys too!  They have painted, and played with play dough, and colored, gone swimming at the YMCA, had a play date at a park, eaten numerous snacks, and explored the house from top to bottom.......sorry about the noise level Steve.......they moaned when it was time to leave for the weekend.  Iley informed me that she didn't like our house it was boring.

 Kate's cake she made for me.

 Noah made me a cookie.

They had lots of fun washing the play house too!  Christy is such a fun mom!! She brought out soap and buckets and sponges.  I think this house is now cleaner than when it came out of the box!

 This is Wren's bossy look!  She was telling someone something they should or shouldn't be doing!

We have had 2 sessions with the therapist in the Springs....just about 15minutes from where we are staying, and 3 appointments in Denver which is about an hour away.  Wren's been doing pretty good with it all.  She decided the third day that Iley needed to go too.  She signed to me....."Iley turn doctor"  "Iley, Wren, Mom, doctor"  I said no, Iley is going to stay here........she slumped down crying, and started saying noooooooo nooooooo........but by the next morning she left without too much fuss.  She did not think it was fair that Iley got to stay and play while she had to work.  If she works hard and cooperates.....she gets a treat.  Usually she wants "pop"  Today........she didn't get pop.  We'll just leave it at that.  Any and all prayers for her cooperation would be greatly appreciated!!  This is hard for her.  Her brain is not trained to form words, and remember 2-3 word commands.  She unfortunately is not reacting like Helen Keller and WANTING language and words and understanding.  I'm praying for some kind of breakthrough with her so that she will understand that she CAN do this, and then she can talk to people.  She wants to talk.....she just doesn't want to work for it.......kind of like me.......I WANT to be thin and in shape.........but.......that work part of it.....not so fun.  

So we are home for a day and a half........then we head back for 5 more days of the same.

Thursday, July 3, 2014

Just Kids Doing Summer

My morning bed heads.


Teague is Sherman's cousin that's his age.  He spent 2 weeks with us.......SO much fun :)

When did they get so big???  Wahhhhhh!

 Bubble long as you don't mind small lakes puddles on the floor!

 Those eyes! My China dolls!

 Hang on to your seats people......some serious cuteness ahead!

 Feel free to kiss the screen!  I mean seriously!  Be still my heart.

Those eyes...those cheeks......that little mouth!!!  YUM!

Ella has been working with Iley and 2 other little girls this summer, tutoring them.  This is the room a local church allowed her to use for it.  Thank you Ella, and C.O.B. for your generosity!

 This is the favorite shelf! The big tin is full of prizes to pick from when your homework sticker chart is full.  Then books to be read to you if you work hard and finish before Mom comes.

 When I look out the window to check on Scout and Cricket... I never know what I will see.......the first time I looked, they had the striped towel on the table for a table cloth, and Iley had slipcovered her lawn chair with the flowered towel.  The next time I look, Scout/Wren is in the process of draping the towels over the center beam for their roof.  She figured out how to throw it over, then grab the tip hanging down and pull it.  She is VERY resourceful! 

Monday the girls and I head to Colorado Springs to stay with this gracious family..............

Wren is doing a 3 week stint of audio/verbal (listening/speech) therapy sessions.  We are hoping for some direction, and breakthroughs with her speech and listening.  At the very least, we will know what direction and approach to take with her in the future.   We are hoping to continue some online therapy sessions when we are done.  We will spend an hour a day.....Mon-Fri... for 3 weeks...with 2 different therapists.  One is located in the Springs, the other in Denver.  The Simpson family has graciously opened their basement, and home to us for the duration!  What a blessing it is to be a part of the family of God!  I am overwhelmed by His provision through His people!  A huge thanks to them, and  to my parents for helping make it possible :)

We have been working REALLY hard here at home too.  Every day Wren has to go through her picture/vocabulary cards (we are working towards 100 + 11 family name cards, we are up to 70!!! since March)  I say the word, and she signs/says it to me, if she gets it right the first time it goes on the "done" pile.  If she misses it, it goes back in the stack to try again.  If she pronounces it right the first time, she doesn't have to work with me on pronunciation on that one either.......if she leaves off the beginning or ending sounds...which she does a lot......then she has to sound it out letter by letter with me.  This is what causes her the biggest frustration.....that, and trying to differentiate between words like "blue" and "balloon"  "cut, and cup"  "monkey, and cookie"  We get in a toe to toe, glare to glare, YOU WILL DO THIS......or........YOU WILL NOT WATCH A down.  Every. Single. Day........1 hour a day(at least)...6 days a week.  We are both exhausted when we are done.  SHE is MUCH more forgive and forget than me!  The verse "unless you become as a little child".......has rebuked me many times!!!  When we are done I am feeling...(not saying)......"JUST GO AWAY"....she always wants to come and love on me.  God help me to return the FEELING!!!!  I love this child fiercely......and desperately want her to TALK, and know what is being said!!!  But oh she brings out the ugly, ugly, ugly in my flesh.  So I thank God for this trial........when I'm not on my knees in despair.......and take comfort in the verse "when you have been tried by SHALL come forth as gold".......assuming I don't wring her neck first :)

I will leave you with a Cricket Quote :)  She is working hard, and learning too!  I was putting her to bed, and doing the routine smooch smooch, hug hug thing.....she grabbed my face planted a smack on my lips and said "THE END"  Bwaaahaaa haaa.  Guess she'd had enough!