Family

Family
Lonely no More:)
And whoever welcomes a little child like this in my name welcomes me. Matthew18:5



Sunday, July 8, 2012

OLOGISTS

Audiologists......and Cardiologists, appointments.  For those interested in the girls appointments, here is a quick update.

Wren went to the audiologist on Thursday, July 5th.  She saw the audiologist and did a booth test.  they put earphone thingys in her ears to see if or how much sound she can hear at different pitches, and decibles.  When she hears something, she is supposed to push the button in front of her.  When she does this a little animal playing a drum, or dancing or some thing lights up in various boxes around the room.  She cooperated really well, we just weren't sure a few times if she was watching our facial expressions and picking up clues, or if she really heard them.  But they are fairly confident that she heard a few as she was consistent with that level of sound.  They feel fairly sure that she does have an auditory nerve which is GREAT!  That is the nerve that carry's sound from the ear to the brain.  She is definately profoundly deaf.......which we already knew.........but they have to fit her with hearing aids to make sure and rule out if those help her.  They are planning on getting some from a loaner bank so we won't have to pay for them.  YAY!    She is scheduled to get an MRI on August 24th to see what the inside of her ear looks like, and to be certain that she has an auditory nerve.  We will know a lot more after this appointment.  IF she does get an implant, it does NOT mean she will instantly hear and understand.  When they are turned on, it's like a baby hearing for the first time.  She most likely won't be able to determine what sound is what.  She will have to have extensive listening therapy.  They warn us that it's very likely she will never have speach, as the window for auditory is 3 yrs. old.  When that part of the brain is not used, it starts to shut down.  We are praying that she Cand get an implant, and that she WILL be able to hear and speak, but are trusting God for whatever outcome.




Iley saw the cardiologist on Friday July 6th.  She saw Dr. Marius Hubbel in KC.  He's a pediatric cardi.  She had a blood saturation level test, blood pressure checked, an EKG, a sonogram, and an Xray.  Her blood oxygen levels were 90%.  A normal childs is above 96%  He said it was low but not critical.  She has a hole in her atrial septal wall, between the right and left atrium, and a hole in the ventrial septal wall, between the lower chambers.  She also has ebsteins enomaly which is a downward placement of the tricuspid valve.  so blood is leaking back into the right atrium from the lower ventrical............I think:)  Whew!  The doctor said that he had NEVER seen a VSD with ebsteins anomaly.  He's an older fellow and he said he's seen a LOT of hearts in his day but never this combination.  He's going to present it to the heart team, and they are going to come up with an action plan.  She is doing great and he doesn't expect to need to see her for 4 months.  Then he wants to recheck everything.  We are supposed to check her heart rate periodically to make sure it's not over 160-180 at rest on a regular basis.  This seems crazy high!  My heart rate is normally at about 60-65!

4 comments:

  1. Okay...your girls are just beautiful! I pray that Wren's brain develops speech...God can do anything! I pray that the team of cardiologist come up with the right plan for Iley.

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  2. Thanks for the update Judy, I had been wondering how it all went. Praying everything turns out ok! Enjoy your vacation!

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  3. Thanks for updating! We have been wondering what you found out.Have a fun trip!

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  4. Hey lady, thanks for the updates! I just read the last three. Btw, Cassie also has a VSD and ebstein's anomaly and doing great since her heart cath to correct a different problem.

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