Lonely no More:)
And whoever welcomes a little child like this in my name welcomes me. Matthew18:5

Sunday, July 29, 2012

Iley Heart Update

We got a call from the pediatric Cardiologist while we were on vacation.  He said he'd presented Iley's case to the "brainstorming" team.......basically the group of Cardiologists at Children's Mercy Hospital in KC.  Dr. Hubbell had never seen Iley's combination of Defects in the same heart.  They decided after some research that the best place for her surgery would be at the Mayo Clinic in Rochester Minnesota.  So we are scheduled for open heart surgery on Sept. 21st.  We will be there for a week to 10 days if everything goes well.  Longer if there are complications.  Please pray for her to remain healthy, and for the surgery, Lord willing to be a success. 

You talkin about Me?

This is the drawing that the surgeon drew for us to explain what was going on.

She has a ASD (atrial septal defect) which is basically a hole between the right and left atrium in the septum.

She also has a VSD (ventrical septal defect)  which is between the two lower chambers, the ventricals. 

The ebstein anomaly, is really a downward placement of the tricuspid valve.  This is the valve that allows the blood that comes in from the body to the right atrium, to build up and then the pressure opens the valve to the lower chamber, the right ventrical.  Hers is leaking blood back up into the right atrium and causing it to be slightly enlarged.  We have to monitor her blood pressure occasionally.  If it gets above 160-180 beats per minute, while at rest, we are to call the doctor.  Otherwise, she has no restrictions, or medicines.  She is a happy, chirpy, active little Cricket. 


  1. thanks for updating. Troy told lane about the surgery but I was curious for a little more info. Praying for everyone!!!

  2. I will pray for you and your little darlin', Judy. She is precious.